Emerge Woman Magazine Partners with Sickle Cell Disease Association of America, Inc. to Increase Awareness about Sickle Cell Disease

 

New Media Partnership Will Enhance Education and Outreach Efforts to Increase Awareness about Sickle Cell Disease and Sickle Cell Trait

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Sickle Cell Disease Association of America, Inc. (SCDAA) and Emerge Woman Magazine have a mutual goal of ensuring that as many people as possible know about sickle cell disease (SCD), sickle cell trait (SCT) and the complications of this rare blood disorder that can be life-threatening.

This month, Emerge Woman Magazine and SCDAA have come together in a wonderful new partnership to bring information, education and stories to a broad and diverse audience. The partnership will use a combination of print, digital platforms, events and speaking opportunities to help individuals know their status, to address stigma, to inspire others with stories from individuals living with SCD and to encourage people to get involved with a national cause to find a universal cure for SCD.

“SCDAA is grateful for this new media partnership and the impact it will have in disseminating information about SCD and provide a new forum for those living with and affected by SCD,” said SCDAA President and CEO Beverley Francis-Gibson. “Emerge Woman Magazine is a beautiful new publication that highlights accomplished and successful women from all walks of life, and this unique partnership will provide exciting new opportunities for SCDAA to inspire others and to keep SCD at the forefront of health discussions.”

SCD, an inherited blood disease, causes red blood cells to have a sickle shape. Because of their stiffness and unusual form, blood flow is blocked to different tissues, ultimately damaging them. These sickle-shaped red blood cells contain an abnormal type of hemoglobin, hemoglobin S; normal red blood cells have hemoglobin A. Hemoglobin is important because it helps carry oxygen throughout the body. There is currently no cure for SCD. SCD is a global health problem affecting millions of people around the world. It is estimated that approximately 100,000 Americans have the disease, and more than 1,000,000 worldwide have sickle cell trait. Each year, approximately 1,000 babies in the United States are born with SCD, and there is no universal cure for this life-threatening disease.

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Emerge Woman Magazine Founder and CEO, Qiana Cressman states, “The Sickle Cell Disease Association of America is the standard of excellence and top organization for research, education, fundraising and community service for sickle cell disease. This cause is critically important to me as founder of Emerge Woman Magazine and as a community leader having worked with sickle cell patients for 22 years. Additionally, I lost a relative to this disease. Our publication is passionate about partnering with SCDAA Leadership to provide a platform that enhances awareness, funding and supports this amazing network of members and patient families across the country.”

SCDAA’s mission is: To advocate for people affected by sickle cell conditions and empower community-based organizations to maximize quality of life and raise public consciousness while advancing the search for a universal cure. SCDAA has several upcoming events that we encourage you to learn more about, including:

2019 SCDAA Advocacy Day

April 8-9, 2019

SCDAA hosts the 2019 Advocacy Day Sickle Cell Disease Association of America, Inc. on Capitol Hill in Washington, DC to advocate for those affected by sickle cell disease. Representatives from the sickle cell community meet with Members of Congress to share key legislative issues that are important to individuals living with SCD and their families, including promoting stable funding for research, better healthcare access, expanded programs, and increased education and awareness for the SCD community and programs throughout our nation.

6th Annual Walk with the Stars & Move-a-thon

June 22, 2019

Canton Waterfront Park

3001 Boston Street, Baltimore, MD 21224

The 6th Annual Walk with the Stars, a 1K, 2K and 5K walk/run held in Baltimore, MD, is hosted by the national headquarters of the Sickle Cell Disease Association of America, Inc. Walk with the Stars is one of SCDAA’s largest events dedicated to finding better treatments and a cure for sickle cell disease (SCD). Every dollar that you raise goes towards preventing the complications of sickle cell disease through awareness, education, advocacy and research. SCDAA to-date has raised over $500,000 from this event for better treatments and improvements in the quality of health for individuals, families and communities affected by sickle cell disease.

47th Annual SCDAA National Convention

October 9-12, 2019

Renaissance Baltimore Harborplace Hotel, 202 E Pratt Street

Baltimore, MD 21202

The 47th Annual National Convention is a four-day conference designed to address the multi-factorial aspects of sickle cell disease and sickle cell trait (SCT). In an effort to advocate for improved quality of life for individuals and families affected with SCD and its associated morbidity and mortality, the conference fosters the exchange of the latest scientific and clinical information related to the disease. This is done through the offering of innovative symposia, training seminars, interactive panel discussions, and special events. Look for an announcement in the next couple of weeks about abstract submissions.

To learn more about SCDAA and its events and programs, visit sicklecelldisease.org.